Gary update 7/30/10 - Good news? Bad news? Who knows?

I had my appointment today at Moffitt for a triple phase CT scan of my liver. The results came back negative. I would be excited about that except that this disagrees strongly with the PET scan I had earlier and I am continuing to have pain in the liver area, nausea, vomiting, and other digestive problems. The doctor is dumbfounded over it.

He says he sees nothing on the CT which would indicate any cancer growth. He can't explain the nausea/vomiting or why I'm continuing to be heavily fatigued. He said that, although all scans indicate that I have the slow-growing type of neuroendocrine cancer, that many of the manifestations of the disease are expressing themselves like the more aggressive forms. He said he could tell that I had noticeably deteriorated, but is at a loss to explain why since he says nothing has changed that he can see with regard to the tumors.

Radiation round 2 is OVER :)

I am so happy to say that radiation round 2 is OVER, he made it. It has been a very long month for the whole family. The kids had a really bad time thru all this they had to watch daddy sleep all day get violently sick after the smallest effort with things. They would ask me is daddy getting worse he seems sicker. I can only imagine it is the most difficult thing for us and we comprehend most of what is going on they just know daddy is sick and they are afraid. They are so happy tonight to see daddy feeling a little better, when I called him for dinner Annie got the hugest smile and and said "Daddy is going to eat?" He has two weeks now of a medical break before we head to Tampa to get rescanned and get a treatment plan for the liver cancer. I am also so happy to say that God led us to the perfect car for us we recently purchased a Ford Expedition very used but in amazing condition this car will be such a pleasure to drive to Tampa in my youngest was so happy to realize we could take trips again because we have a descent working car finally. I am so thrilled with it I still cant believe it is mine but I will adapt :)

Thank you all for standing so strong with us thru this radiation/car drama we cant put into words how much your love and support means to us. This has been a marathon journey we are quickly approaching one year dealing with this one year , one really LONG year. Next month will bring the beginning of the liver treatment but it will also be a great first time experience for the kids the will go to a special camp for kids who have a parent dealing with Cancer. They got so stoked when they watched the you tube promo video and it said from the time they get to camp the kids only job is to have fun. I am hoping while they are in camp mommy and daddy can go to a hotel in Orlando and have some fun ourselves ;) Thank you again for loving and supporting us in this journey we could not do it with out you.

Lord thank you for the friends that share this journey with us and please Lord be with the friends who are running marathon journeys of their own.

Hanging in there in faith

We are at day 12 now of a 20 day treatment regime. He has had his up days and his bad days. His Liver pain is consistently hurting him even through a pain patch and several other pain pills. This journey continues to take its toll on the entire family. The kids have pulled me aside and asked if Daddy's is getting worse and I just have to remind them we are standing in faith for his healing and right now our faith is all we have. He has been able to continue to work from home he pieces together a work day sometimes at 12 am when ever he has the energy. We got a big blow this last week when my vehicle died we are believing God for a trustworthy vehicle one that will get Gary to Tampa and help us get him to all the appointments and treatments he needs. We continue to be proactive and look at used cars on a daily basis but nothing so it is truly in Gods hands. We have been thankful for my Mom who is helping the kids get to their activities and to Gary's dad and brother who is helping Gary get to treatments. As Independence weekend is on us I am declaring my Independence from worry. I have to let it sit at Gods feet, Gary's health, My future and my vehicle, its all safe and sound in Gods hands He has not filled us in on His plans yet but as long as He has his it under control we will be okay. Thank you all for your help, love and prayers and rides and lawn mowing we are so grateful for your love and friendship. 8 more treatments we can see the light at the end of the tunnel just praying it isn't the same train that keeps knocking us around lol. I look forward in faith to posting about how God has helped us get thru this radiation and how he will direct us to the right best car for us.

Count your blessing section:

We had a wonderful lady come a long way to pick up Anne and Cassie so they could go to their
water park youth trip.

Gary has had wonderful visits with his Dad and Brother as he has gone to radiation treatments

A lady at the doctors office turned Gary onto Ginger ale to help sooth his nausea and it works pretty well.

We had Gary's work send us a huge meal from Sonny's food that we ended up getting 4 meals from and just the meal itself was a blessing when your just so exhausted cooking is unimaginable.

We have a gentleman coming over this weekend to mow our lawn he called at just the right time when our yard is starting to look pretty over grown.

The multitude of comments and encouragement we receive thru facebook, it is amazing.


Gary's work

Thank you God for the many blessings you pour out on this family. Thank you for never leaving us or forsaking us thank you for taking care of every need you are the best! amen